Edited 17/02/2021
MS - Consultants Support - What should he say?
Jellytots
May 25, 2011 18:57
Hi AllI am new to message boards. We have started our second time adoption, for the seond time.We adopted our first child before I was diagnosed with MS. We then applied again to the LA and as soon as they found out, sneakily made it very difficult that we would pull out, which we did. We then applied to an agency, who from the start knew about the MS and encouraged us to continue, it should not be a problem.They then had a meeting with our LA who are doing everything they can to make it very difficult. They know want to meet (trying to dismiss us again) but I am determined to continue.I have very mild MS and really does not effect me on a daily basis. My main sympton is cold feet and hands but think this is my Raynauds and not MS.My consultant and the team of doctors are supporting me and are going to write to them with this effect but want to know what to put in a letter.Has anyone any suggestions or experience of what panel would be looking for.We are a mixed race couple, financial very secure. I returned to work threee days per week in an office for social services, to proove that I am capable of living!Help please!!!xx
rosemeister
May 26, 2011 00:53
Hi there, I'm sorry to hear that you are having problems. We had terrible problems because of my symptomless ms because the la ignored the reports and took their decision based on what seemed their own prejudices. However we went to a VA who were nicer to deal with and they actually took notice of the reports.When it comes to the reports surely their medical officer will ask your consultant questions to guide them. My neurologist was asked about my symptoms and also my prognosis because they don't want to provide you with a child carer- their words not mine! Consultants are good at writing reports with a positive slant to themIf your original agency is causing problems maybe you should ask them why if all your reports are ok. Personally I would go to a VA and be treated fairly and with some respect!Good luck !!
Edited 17/02/2021
Pear Tree
May 26, 2011 11:28
hiI can wholeheartedly agree with rosemeister here.VAs are much nicer to deal with and tend to take a much more "overall" view of strengths and weaknesses.As an experienced adoptive parent who has lived within the constraints of a diagnosis of MS and yet has been resourceful and shown you can "think on your feet" etc they would be very short sighted to turn you down.Fighting LAs who dont want to process you or do what you want them to do (ie act properly!)often seems to end sorely.The words "disability discrimination" come to mind and as MS is a listed condition under that act I do hope SS are being made VERY aware of their obligations to treat you fairly on equal footing to able bodied families....
Edited 17/02/2021
Jellytots
May 31, 2011 12:16
Hi Thanks for your replies.I did originally go with an LA against my better judgement.We then started with a VA and after they have had a meeting with the LA, as they say I have to have a reference from them. It too seems to be going downhill but for no specific reasons. We originally had glowing reports from out first adoption and they encouraged us to go back then MS! that changed everything. The medical advisor did not even bother to write to my consultant, even thought they were based in the same hospital grouds. She just took my file and game up with her own opinion.One reason was that I might drop a baby because I have MS!We had a glowing report from the our first childs local authority, as we had to go out of area for an ethnic match, being a mixed race couple.My consultants registrar is going to write a supporting letter for me but she is unsure what specific issues that they need.Thanks for any advise
Edited 17/02/2021
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