Hi any other adopters out there with a diagnosis of SYNGAP1 ?
SYNGAP1 Diagnosis
Zanewhoop
October 10, 2022 23:26
Safia
November 5, 2022 09:25
I think this is probably a very rare syndrome and you might be better to ask for adopters who have adopted children with rare syndromes in general depending on what sort of advice you want - or for specific help around specific features of the syndrome. Also - which you may well have done already - look for a support group or similar for people / or parents of people with that syndrome or specialist organisations for advice
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